|
About The MPS Society
ABN 76 064 723 146
CFN 10916
Contact Details
| Membership | History
of the Society | Donations | Area Family Representatives
| Board of Directors and
Committee of Management
The MPS Society supports individuals affected with MPS,
parents of affected children, other relatives and friends of affected children.
As well, we extend our support to those affected by related disorders and invite
them to be members also. Professionals working in the MPS and related fields and
all those interested in the MPS and related diseases are welcome to join the
Society.
Our
Mission Statement Is:
|
To value, nurture and support those
affected directly or indirectly by Mucopolysaccharide and related
diseases. |
Our Aims Are
To:
-
act as a support group for our members through
-
the provision of local family support networks,
-
the publication of quarterly newsletters,
-
the holding of biennial National Conferences and
-
by providing relevant information;
-
promote a partnership between families and professionals,
both locally and internationally;
-
promote community awareness of MPS and its impact on
families and carers.
|
A life is not measured by the number of
days, months or years that it is lived, but by the effect that life has on other
people who touch it. It is not measured by the length of its days or the height
of its achievements, but by the breadth of its influence.
|
|
