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Fund the national office enquiry
service particularly for those newly diagnosed families
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Subsidise the funding of the biennial conference
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Produce the quarterly newsletter
- The Linking Hand
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Keep up to date with
international developments in MPS research
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Subsidise the production of
booklets and information to members of the public
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Fund delegates in their support
role to attend family days, information days and conferences,
including sending representatives to relevant international
conferences
Support our Members - including
some direct assistance to MPS families in need such as temporary
wheelchair/scooter hire or relocation costs for a family compelled
to move closer to a main hospital for treatment of their MPS child