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Click on any of the topics below to take you
directly to that subject.
What does Centrelink offer
me by way of Financial Assistance?
- The applicable payments are
Carer Allowance Under 16,
- Carer Payment (a pension type payment) and
- the regular family payment, Family Tax Benefit.
- Comprehensive information and claim forms for these
payments are available on the Centrelink website www.centrelink.gov.au
or by calling the disability section on 132717 or the Family Assistance
Office on 136150.
- Pick up from your local
Centrelink Office a number of publications
including a recent publication entitled
Disability Carers Illness or Injury - Payments
and Services
- MPS is a condition recognised
by Centrelink in respect of qualification for
the Carer Allowance for children under 16 years
and for the Disability Support Pension for those
over 16 years
- Most branches of Centrelink
have a Disability Officer who can help you
complete the forms
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What
help can I get from my local council?
- Most local Councils have a
Disability Officer who can help with local
information on services and facilities available
eg recreational programs, childcare facilities
- Larger garbage bins at no extra charge to take into
consideration the extra nappies that you will need to deal with -
write to them, explaining the situation, and ask for a larger bin
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What
educational options are available and when can I
access them?
- After your child is diagnosed
with an MPS condition you can access a range of
services to assist your child to achieve their
full potential.
Early Intervention
- Early intervention can provide
assessments and therapy for babies and young
children before they start school,
including physiotherapy, speech therapy,
occupational therapy and hydrotherapy and the
services of a trained teacher. Early
intervention can be provided either in the home,
for very young children, or through specialist
centres. Your local child health service
or paediatrician should be able to provide you
with details of what is available in your local
area.
School
- When your child is ready to
start school there are a number of options
available including:
- regular schooling in
independent, Catholic and government schools
- special classes in regular
schools for children with disabilities
- specialist schools for
children with disabilities
- Regular Schooling - specialist
help is available in the form of specialist
teachers and integration aides. Your child
may qualify for additional support depending on
their level of need, your wishes and the
capacity of the system to provide this.
The decision of where to send your child to
school can be a difficult one to make so you
should ideally start the process early.
Arrange visits to check out the facilities and
potential resources available in your local
schools well ahead of time.
- Specialist Classes (to be
provided)
- Specialist Schools (to be
provided)
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What respite care is available to help me?
- Local Councils provide carers
in your home at a discounted rate. Contact
your local council regarding your eligibility.
- Your local children's hospital
can provide information through their social
work department.
- Carer Resource Centres are a
part of the Carers Association in each State and
Territory. They provide carers with
information and referral on the range of
community services and government assistance
available to support you in your caring
role. To contact your nearest Carer
Resource Centre phone Freecall 1800 242 636.
- Carer Respite Centres provide a
central coordination point for arranging your
respite needs. To contact your nearest
Carer Respite Centre phone Freecall 1800 059
059
- For hospice accommodation in
New South Wales see
Bear
Cottage
- For hospice accommodation in Victoria see Very
Special Kids
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How do I become a part of the Society?
How can I help raise funds for Australian MPS Society?
- Organise fund raising functions in your own area
- Send a donation towards the work of the society
What if I can't afford to attend
an MPS conference? Is there financial help
available?
- Whenever a conference has been arranged, we provide details
in our What's New page of assistance that is
available regarding the cost of
attending the conference
- Alternatively, contact our National
office and ask us what resources are available
What does Australian MPS Society do with the funds that are raised?
- Produce the quarterly newsletter
- Subsidise the funding of the biennial conference
- Fund the national office enquiry service particularly
for those newly diagnosed families
- Fund delegates in their support role to attend
family days, information days and conferences
- To keep up to date with international developments in
MPS research
- Subsidise the production of booklets and information
to members of the public
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What is currently happening with medical research into a cure/treatment for
MPS?
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