The Australian MPS Society takes no responsibility for and makes no warranty in  relation to any of the information contained on any linked site.  If you have a suggestion for a link, or would like us to add your own family page about your MPS or related disease story, please email the Webmaster with your suggestion.

International MPS Societies

• International MPS Network (global)
• USA MPS Society
• Canadian MPS Society
• UK MPS Society
• German MPS Society (in German)
• Italian MPS Society (in Italian)
• Austrian MPS Society (in German)
• Swiss MPS Society (in German)
• Hong Kong Mucopolysaccharidoses and Rare Genetic Diseases Mutual Aid Group (English option)
• Spanish Society for Mucopolysaccharide and Related Diseases (in Spanish)
• Turkey MPS Society (in Turkish)

Lysosomal Diseases - General and MPS Sites

• The Lysosomal Storage Research Group
• Research Community Discussion Board (Lysosomal Storage Research Group)
• Global Organisation for Lysosomal Diseases (GOLD)
• Hunter Patients
• Lysosomal Diseases Australia
• NZ Lysosomal Diseases
• Mucopolysaccharidosis

Other Related Diseases and Genetic Disorders

• New Zealand Organisation for Rare Disorders
• Genzyme Corp MPS I Site
• Jewish genetic disorders
• Pompe's Disease
• Niemann-Pick Type C disease
• National Niemann-Pick Disease Foundation Inc
• Batten Disease
• Association for Glycogen Storage Disease (UK)
• FSGA ( Fabry Support Group of Australia Inc.)
• Fabry Support and Information Group
• International Society for Mannosidosis & Related Diseases
• Krabbes.net
• National Tay-Sachs and Allied Diseases Association Inc
• National Gaucher Foundation
• National Organisation for Rare Disorders Inc
• AGSA (Association of Genetic Support of Australasia Inc)
• GSNV (Genetic Support Network Victoria)

Children's Hospitals

• The Children's Hospital at Westmead (Sydney, NSW)
• The Royal Children's Hospital (RCH) (Melbourne, Vic)
• Adelaide Women's and Children's Hospital (Adelaide, SA)
• Queensland Royal Children's (and other) Hospitals
• Royal Hobart Hospital (includes Children's Services) (Tas)
• The Canberra Hospital includes Children's Services) (ACT)
• Child and Adolescent Health Service Western Australia (WA)
• Department of Health and Families - Royal Darwin Hospital (NT)

Respite Services

• Very Special Kids (Victoria)
• Bear Cottage (NSW)

Research

• Genzyme Corp
• Bio Marin Research
• Shire
• Murdoch Childrens Research Institute (Melbourne)
• Pompe's Disease
• National Referral Laboratory for Lysosomal, Peroxisomal & Related Genetic Disorders (Adelaide)
• Office of Rare Diseases

Insurance Issues for the Disabled

• National Disability Insurance Scheme

Useful Disability Sites

• Therapy Bookshop (including toy shop, sensory shop etc)
• Endeavour Foundation
• Ricability (Research and Information for Consumers with Disabilities, UK)

Clothing Sites

• Rolli Moden - Clothing and Accessories for Wheelchair Users
• Specially for You - Clothing for the Physically Challenged
• Easy Access Clothing
• Tu-rights - Patterns for the Physically Challenged
• Eenee Designs Australia (including environmentally friendly nappies)

Family Pages

• MPS Forum Dot Com (hosted by the Wellman family)
• Ben's Dream (Sanfilippo)
• The Sanfilippo Children's Research Foundation
• Shawn Brush (Morquio)
• A Cure for Kirby (Sanfilippo)

Assistance Providers

• Make a Wish Foundation
• Starlight Foundation
• Ronald McDonald House Charities