Links to Interesting Sites

The Australian MPS Society takes no responsibility for and makes no warranty in  relation to any of the information contained on any linked site.  If you have a suggestion for a link, or would like us to add your own family page about your MPS or related disease story, please email the Webmaster with your suggestion.

International MPS Societies

• USA MPS Society
• Canadian MPS Society
• UK MPS Society
• German MPS Society (in German)
• Brazilian MPS Society
• Italian MPS Society (in Italian)
• Austrian MPS Society (in German)
• Swiss MPS Society (in German)
• Hong Kong Mucopolysaccharidoses and Rare Genetic Diseases Mutual Aid Group
• Spanish Society for Mucopolysaccharide and Related Diseases

Lysosomal Diseases - General and MPS Sites

• Global Organisation for Lysosomal Diseases
• World Organization of Research on Lysosomal Diseases
• Hunter Patients
• Lysosomal Diseases Australia
• Rare Genetic Diseases in Children (An Internet Resource Gateway) – Lysosomal Storage Disease
• NZ Lysosomal Diseases
• Mucopolysaccharidosis
• Life Saving Drug Program Guidelines for Aldurazyme (MPS I)

Other Related Diseases and Genetic Disorders

• New Zealand Organisation for Rare Disorders
• Genzyme Corp MPS I Site
• Jewish genetic disorders
• Pompe's Disease
• Niemann-Pick Type C disease
• National Niemann-Pick Disease Foundation Inc
• Batten Disease
• Cystinosis Central
• Association for Glycogen Storage Disease (UK)
• Fabry Support and Information Group
• International Society for Mannosidosis & Related Diseases
• Krabbe's Family Network
• Late Onset Tay-Sachs Foundation
• National Tay-Sachs and Allied Diseases Association Inc
• National Gaucher Foundation
• National Organisation for Rare Disorders Inc
• AGSA (Association of Genetic Support of Australasia Inc)
• Genetic Health Services Victoria
• GSNV (Genetic Support Network Victoria)

Children's Hospitals

• The Children's Hospital at Westmead (NSW)
• The Royal Children's Hospital (RCH) Melbourne
• Adelaide Women's and Children's Hospital (SA)
• Queensland Royal Children's (and other) Hospitals
• Perth Children's Hospital (WA)
• Royal Darwin Hospital (includes Children's Services) (NT)
• Royal Hobart Hospital (includes Children's Services) (Tas)
• The Canberra Hospital includes Children's Services) (ACT)

Respite Services

• Very Special Kids (Victoria)
• Bear Cottage (NSW)

Research

• Genzyme Corp
• Bio Marin Research
• Transkaryotic Therapies, Inc. (TKT)
• MPS VI Global Registry
• Adelaide Women's & Children's Hospital Research Group
• Murdoch Childrens Research Institute (Melbourne)
• Pompe's Disease
• National Referral Laboratory for Lysosomal, Peroxisomal & Related Genetic Disorders (Adelaide)
• Office of Rare Diseases
• University of Minnesota Gene Therapy Program
• Harriet Lane Links (Database)

Useful Disability Sites

• Therapy Bookshop (including toy shop, sensory shop etc)
• National Council of Intellectual Disability (NCID)
• Intellectual Disability Services Council
• Endeavour
• Technical Aid Victoria
• Enablenet
• Technical Aid to the Disabled, SA
• Ricability (Research and Information for Consumers with Disabilities, UK)

Clothing Sites

• Finally It Fits Clothing
• Rolli Moden - Clothing and Accessories for Wheelchair Users
• Specially for You - Clothing for the Physically Challenged
• Easy Access Clothing
• Awear
• Tu-rights - Patterns for the Physically Challenged
• Eenee Designs Australia (including environmentally friendly nappies)

Family Pages

• MPS Forum Dot Com (hosted by the Wellman family)
• Brian's Page (MPS 6)
• Ben's Dream (Sanfilippo)
• The Sanfilippo Children's Research Foundation
• Mitchell - The Little Boy Who Always Smiled (Hurlers)
• Julia's Hope (Sanfilippo)
• Daria's Diary (Hurlers)
• Shawn Brush (Morquio)
• Reach Out For Romie (Hurlers)
• Jenna Marie's Page (Hurlers)
• The Pace Family Page (Hurlers)
• Robbie's Page (Sanfilippo)
• Jordan's Research Trust (Battens)
• A Cure for Kirby (Sanfilippo)

Assistance Providers

• Make a Wish Foundation
• Starlight Foundation
• Ronald McDonalds House Charities