Here are some of the much loved members of the MPS
Family.
2008
Conference Photos 2006
Conference Photos
2004 Conference Photos
2002 Conference Photos
Family Day Photos
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If you would like your favourite photo/s
(maximum two) to appear here, please
email to the Webmaster with details of
name, syndrome, date of birth, when they passed away (if applicable), a short
comment about them and/or the photo and the city/town and State in which you live.
Alternatively, you can post your photo and information to the National
Office.
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Jayda
was born on 8th November 2006 and has MPS III. Jayda was diagnosed when she
was 3 months old. Jayda loves watching the wiggles and knows most of the
words to their songs. Jayda also likes to play outside and loves to eat!
Jayda attends daycare twice a week and enjoys it once she's there. She also
now has a little sister (unaffected) whom she adores. |
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Tabitha,
born 23/2/02 has Hurler Syndrome. Tabitha underwent a trouble free
successful unrelated cord blood transplant on 6/1/04 at Sydney Childrens
Hospital. She loves preschool, music, singing, jazzercise and doing
everything she shouldn't, because she can. The photos show Tabitha during
transplant and trying out her school uniform for next year. Tabitha lives in
Canberra. |
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Tom, born 5
November 1996 Sanfilippo
Type B. Tom
loves swimming and watching the Wiggles and
Barney videos, clapping his hands when he particularly enjoys a song.
Tom loves coming up to give you a hug. Tom also enjoys going to school
and can still take part in some activities although he is now mostly
confined to his wheelchair. Tom enjoys his food, some
of which he can still take by mouth. Tom loves riding in the car and notices whenever you turn
a corner to head for home. Tom lives in Sydney, NSW
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Jack, born
2 April 1995 Sanfilippo Type B. Passed away peacefully
at home on 22 November 2008, aged 13 years. Jack loved the Wiggles and
Playschool videos. Jack enjoyed watching all the people doing lots of
activities and being with family members and dogs Abbey, Jett and Bosco.
In Jack's last few years he was confined to a wheelchair and could no longer take food by mouth
but he had lots of wonderful carers who came and helped look after him and he
was constantly surrounded by his loving family.
Jack lived in Sydney, NSW. A gentle and beautiful soul, he will be
forever in the hearts of his family and all who knew him.
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Robbie, born
17 June 1981 Sanfilippo
Type A. Passed away peacefully on 1 January 2003. Robbie
lived in Ipswich, Queensland. Rob
loved being with his family, listening to music; Beatles,
Roy Orbison, Kenny G, easy listening music, watching his
favourite shows;
Heartbeat, Sale of the Century, Bugs Bunny and Donald Duck
cartoons, and he loved being talked to. Sadly missed
by all who knew and loved him. |
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Ben, born
9 February 1995 Hunter
Syndrome, Ben loves to kick a ball around or
just play with bat and ball. He also likes to watch sport on TV.
Apart from The Wiggles and Hi-5, his favourite movies are Grease, Titanic,
Sound of Music, Wizard of Oz, Pretty Woman, The Full Monty (just to name a
few!). Ben lives in Penrith, NSW. |
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Ryan, born 12
November 1991 Hunter
Syndrome. Passed away 7 December 2003
surrounded by his loving family. Ryan liked music, playing cars and duplo and watching television. He is seen in
the first photo with his sister Jessica (8 years
old) and his little brother Brenden (5 years
old). Ryan is sadly missed by all friends and
family who loved him. |
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Mitchell, born
9 June 1999, Passed away peacefully 7 November 2000, Hurler Syndrome.
Mitch was always happy and had a smile for all. He loved the beach,
cheese balls, chupa chups, his bike and playing Playstation with his Dad,
Mum and brother and sister. He was greatly loved and is sadly missed by
all who knew him. |
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Jack,
born 2 June 2000, diagnosed with Hurler Syndrome in July 2001, Jack
underwent a successful Bone Marrow Transplant on 1 February 2002.
Jack loves school, watching The Wiggles, playing in his playground and
swimming. He also enjoys helping mum to cook but is not
interested in licking the beaters. Jack still loves McDonalds, chocolate
and ice-cream!
Jack lives in Brisbane, Qld. |
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Benedict, had Sanfilippo Syndrome. Ben was born on 24
February 1989. His favourite occupation
was eating anything and everything he could get his hands on. Ben lost many of his skills but still
lit up a room when he gave one of his famous smiles. Sadly Ben
passed away on 6 April 2002 and is greatly missed by all. |
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Danielle, born 23 November 1992 had MPS I, Hurler
Syndrome. She passed away peacefully on 6 June 1998 with her
family and is sadly missed. Danielle loved to sit in her comfy chair watching her ABC
videos. She especially loved the Bananas in Pyjamas, Noddy and
Thomas. She loved being home with her family in Churchill, Victoria
and absolutely hated going to see doctors! |
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Cameron, born 6 July 1998, Hunter Syndrome. Cameron loved music and
videos. Some of his favourites were Grease, The Pirate Movie, Xanadu, Blue
Hawaii and Star Wars. Cameron also loved Hi-5, The Wiggles and Dora The
Explorer. Cameron attended Chalmers Road School at Strathfield 5 days a
week. He enjoyed swimming, walking, parties and riding on buses, trains and
horses. He also loved to watch his brother play football. Cameron is seen
in the first photo at his school Christmas presentation in 2008 and the
other is with his 8 year old brother Daniel, who was his biggest fan!
Cameron sadly passed away suddenly on 4 May 2009. Cameron gave great joy to
all who had the pleasure to meet him. He will be missed greatly but always
remembered by all. |
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Jordan was born March 2nd 1995, he was diagnosed with
MPS III just before he turned 2. He is the 4th child in his family and he
has 3 older brothers including Zac who also has MPS III. Jordan has a nephew
named Noah whom he adores - they have a great connection. He attends Echuca
Special School. Jordan is a very happy boy, he loves swimming, walking
around, bike riding, and his dog. He sleeps with the help of Melatonin, he
doesn't talk much most of his words are gone, but he does say, Mum, Money,
Donalds (McDonalds). His family just hope he stays happy. |
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Zac was born 24th April 1990, he
was diagnosed with MPS III just before he turned 3yrs old. He is
the 2nd child in his family and he has an older brother and 2 younger
brothers. His brother Jordy is also affected. Zac attends an
adult Centre which he just loves and this year he has been on a steam train,
gone to the snow, fishing in a boat, camel riding, and camping. Zac is
very happy to be out of the school structure. He doesn't talk words
anymore, he walks all day and night till he drops off to sleep, he is happy
and has a very weird sense of humour - he laughs at other peoples mishaps!
He has a nephew whom he communicates with and they get into trouble together
- Noah is only 2 years old. |
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Chloe
was born on 4 November 2000 and suffers from Hurler-Scheie Syndrome. Chloe
enjoys going to preschool 3 days a week and playing with her 3 year old
brother. She is a very happy go lucky little girl, nothing gets her down,
she always has a smile on her face. She is looking forward to going to
school in 2006 with her 2 older sisters. Chloe lives in Morayfield
Queensland. |
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Jacob is 13 years old
he has Sanfilippo type A. He was born January 18, 1994. He loves movies and
eating also being around his family. Jacob is now in a wheel chair but still
a very happy boy. We love him so much. He lives in the little town of Big
Sandy TN. Here are two pictures of him and we hope one day for a cure. |
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I
am very happy to be able to get in touch with your society... because in
this way I realise there are other cases like mine in different parts of
the world who share the same experiences. I have two boys - Jakeline (16 years old) and Valtercie (15 years old), MPS sufferers with
Morquio Syndrome and another yet undefined. Both are wonderful
boys, united and loving and also much loved in the community where we live
in Goiania Brazil. |
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Edwin
was born on October 28, 1996 Hunters Syndrome. Edwin
likes to see SpongeBob he also likes to Play Gamecube his favorite Game is
Sonic DX and Sonic Shuffle. Edwin is really loved by all who see him, he is
really friendly. Edwin lives in Pomona California with his family. We all
love Edwin ...Very Much. |
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Aaron was born on 8th July 1993. He has
Sanfilippo A, Aaron loves watching Barney and looking at books and
photographs. He has a gastrostomy but sometimes eats puree foods. He no
longer talks but laughs so loud at times. His big blue eyes dance when
people talk to him and his smile breaks everyone's hearts. Aaron is a gift
and has taught us so many things over the years especially love. Aaron lives
in United Kingdom with his two brothers Ryan 10 and Liam 4 and of course us,
mom and dad. Aaron is a very special young man. |
Please email your photos and caption to
be added to our gallery to
webmaster@mpssociety.org.au or mail them to the
national office.
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