MPS and Coronavirus (COVID-19)
Advice for Parents, Carers, and Patients
What you need to know about coronavirus
Coronavirus (COVID-19) was first reported in December 2019 in Wuhan City in China. It has since spread across the world and significantly impacted Australia.
To help stop the virus spreading everyone should practice good hygiene including washing your hands regularly, coughing and sneezing so that it is into your elbow or a tissue (which must be discarded). The idea is to avoid covering with your hand which may then touch others or surfaces, and avoiding close contact with others. People are strongly encouraged to participate in social distancing behaviours to help minimise the spread of the virus.
We encourage people to check the Department of Health’s Coronavirus Information Page for the latest updates. The most up to date information about the outbreak, including information for returning travellers can be found smart travellers website. https://www.smartraveller.gov.au/news-and-updates/coronavirus-covid-19
Please note this is a practical guide only – please ask your own specialist MPS team if you have any questions or concerns about your situation.
People with MPS should be aware that, just like with the flu, they may be at a higher risk of severe symptoms and complications from coronavirus. In some cases people with inherited metabolic disease are at risk of worsening of their metabolic condition if they develop a viral infection.
Practical steps you can take:
Have your clinical teams numbers handy discuss options for telehealth/skype etc appointments rather then go to the hospital for all appointments that don't require a specific test (eg cardiac echo).
If you have any concerns about accessing your hospital for ERT please call you metabolic nurse to discuss.
Please be assured that the Metabolic clinic teams are contactable if you have any questions or concerns. Metabolic clinics may be operating differently for a period of time but we have been advised that there are no concerns with ongoing access to ERT and patients will continue being treated accordingly.
This information was reviewed by our Metabolic clinical experts, March 20th 2020