How We Help

Support for Families

The Australian MPS Society can help by connecting them to other families and directing families to important sources of information. We also provide financial support to families through our Member Assistance Program—MAP. These grants can assist to  to offset the many costs incurred with a diagnosis, such as travel to MPS Conferences, medical aides and equipment and respite.

It is hope that draws us together Hope for a cure, hope for a better day, hope for a bright and fulfilling future for our children.



Our programs and services include:

  • Educational Resources – via our website

  • Membership assistance  Assistance Program – Providing limited financial support to help families manage the extraneous costs associated with MPS and related diseases

  • Research and advocacy – Our staff are available to support families in accessing appropriate care and treatment, connecting to other members for mutual support, and during times of loss and bereavement

  • National Conference – Our biennial national conference brings together the MPS community and expert doctors and scientists to learn about advances in care and treatment while developing life-long friendships

  • The Linking Hand – Our On-line news letter keeps you up to date with local, family and international news and events along with family stories and treatment updates. 

  • Facebook – Join our face book pages to share tips and meet new people.